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Ministry of Social Affairs Quick Responses to a Family with Severe Disabilities in Kupang
KUPANG
(21 May 2021) - The Ministry of
Social Affairs through the "Naibonat" Center in Kupang responded to
the conditions of three orphans with severe disabilities in Lefuleo Village,
West Kupang District, Kupang Regency, NTT.
Poor family with 4 siblings. Both of parents
have died. The mother died in 2014 and the father died in 2019. The first child
is a 24-year-old girl named Martha and the second child to four boys, namely
Darius (22 years), Eston (15 years), and Kian (11 years). The four boys have
severe disabilities. Only Martha is not disabled.
The conditions for the three children were
almost the same. They could not stand, had difficulty moving their legs, but
could speak. Darius is in a more severe condition because his legs and hands
cannot move. The body condition of the three children looks thin.
They have a disability since the age of
approximately 7 years. The symptoms are almost the same, namely when walking
often falls and gradually cannot stand. In the end, all the legs could not be
moved and they could only sit down. Increasingly, the three of them also had
difficulty moving their hands. Darius is unable to move his feet and hands.
Eston can still move his fingers slowly and Kian can still move his hands
slowly.
These three children with disabilities depend
on their older sister. Whatever the activities of the child must be assisted by
their sister. Darius must be fed with every meal. Eston can slowly eat by
moving his fingers, but it is necessary to help to raise his hands. Kian can
still eat by himself.
When going to sleep, they must be helped to
lie down. Her older sister had to take a bath to the toilet. So far, they have
never had their health checked, because they have no money and do not have a
BPJS.
Her older sister's condition also looks thin.
She had to take care of her three paralyzed siblings as well as to meet their
basic needs. She took the initiative to sell or open a small shop at her house
because it was impossible to work outside the village.